I'm walking All Night Long! But I need your help
I'm joining a celebration of courage to raise funds for sick kids and their families. I really need your support! Each day can feel like a marathon for sick kids and their families. Which is why I'm walking 42km All Night Long this October.This is where you can help. Will you please donate what you can? Every dollar you give will support sick kids in Queensland and give me the inspiration and energy I need to walk All Night Long.
Yep, this is going to be a challenge, and I'm going to be exhausted and tired at the end. But I know with your help, it will be so worth it, and it's a fraction of what families with sick kids go through. Please donate now. 💛
My Impact
So far this year I have helped provide...
21
bags of Bravery Beads to recognise the courage of a sick child.
6
families supported with urgent clothing, food, and toiletries.
2
nights of comfort for a family at Ronald McDonald House.
Thank you to my Sponsors
$105.50
Dynamic Real Estate Media
$105.50
Maverix Property Marketing
All the best on your journey. Its amazing and inspiring to see what you and the family are doing!
$54.07
Jenny Williams
$52.75
Lorena Pudyk
Sending Lots of LOVE
$31.65
Taran Tate
$26.38
Bev Williams
$26.38
Place Woolloongabba
Your donation today was doubled thanks to Place Woolloongabba
$21.10
Miss Mandy
Big Hugs from Miss Mandy
My Achievements
Fundraising page
Updated Profile Pic
Added a Blog Post
Received 5 Donations
Reached Goal
Increased Target
My Updates
Macs neck update
Monday 14th Jul On Friday Mac had seven Botox injections to help relax the muscles that have contracted from dystonia. Which is the involuntary movement of the muscles in the effected area. It will take time at least a week to see any reault or improvement. Unfortunately while we weight it is causing additional pain and discomfort limiting Mac’s ability to position comfortably and sit in the bed or wheelchair. I must say Mac is bloody strong and determined to not let anything stop her she still turns up for her OT and Physio sessions knowing that it’s going to be painful and difficult she pushes through it all. So proud Share
Macs Journey
Monday 14th JulExplaining what’s happening with Mac as simply as a very complex medical case can be done.
14 weeks ago Mac was admitted for treatment of ongoing chronic pain relating to her Gut/brain disorder and inability to stomach any food. This resulted in a feeding tube to maintain nutrition. While in we pushed for treatment on her left foot which had turned 90 degrees inwards the diagnosis for this happening was a contraction caused by dystonia and cerebral palsy (dystonia is a result of faulty signals from the brain being sent). Multiple casts each week has brought the foot back to a nearly normal position which can soon be used to once again weight bare and walk again (Mac hasn’t walked in over 14 weeks).
During this time Mac developed muscle control issues effecting her hands causing them to shake and move incorrectly this resulted in a diagnosis of FND functional neurological disorder (once again the brains communication with commands) being able to scroll on the phone, brush teeth, write all now close to impossible. Then over the past two weeks Mac has developed (possibly, still waiting on confirmation) dystonia in her neck and shoulder which has locked in a painful position once again effecting her ability to move. All this has impacted her ability to transfer into a wheelchair and now requires a hoist to transfer. All the while treating the gut brain disorder having multiple feeding tube replacements due to blockages and not to mention all has resulted in issues with bladder and bowels. Plus a few infections. Wow, sad to write it all out but now many can understand the long admission and our inability to truly know when we will be home.
You are AMAZING!!!!