From their home in Bald Hills, Lawson’s family never imagined how quickly life could change. In March 2024, what started as a simple hospital visit for something unrelated took a turn when doctors noticed his heart was enlarged and working much harder than it should.
That moment became the split in the road – life before, and life after.
Further testing led them to a Cardiologist, where they heard the diagnosis: Vein of Galen Aneurysmal Malformation - a rare, high-risk brain malformation.
At first, his parents, Caitlin and Luke, didn’t realise the seriousness of the condition. They were calm, still processing what the diagnosis meant. It wasn’t until the conversations with specialists continued that the reality of long-term treatment began to settle in.
A big journey for a small boy
Since then, Lawson has undergone nine embolisations, one ETV surgery, and many MRIs, CTs, and ophthalmology scans. Each procedure means an overnight stay in PICU so he can be closely monitored and properly supported with pain management.
This has taken an immense toll on the family, both emotionally and physically. Nothing prepares you for the realisation that your child’s life will be shaped by emergency rooms, procedures, and the uncertainty that follows every test result. Despite this, they continue to move forward with resilience and unwavering love for their little boy.
Support that makes a difference
Throughout this journey, Ronald McDonald House South East Queensland and the Children’s Hospital Foundation have provided comfort and practical support when their family has needed it most.
After every procedure, the family stays in the Ronald McDonald House within the Queensland Children’s Hospital so they can remain near Lawson while he’s monitored in PICU. Having a place to sleep and regroup during such intense periods has been invaluable.
Both organisations have also stepped in during last-minute emergencies, offering clothing, toiletries, meals, gifts, and entertainment for Lawson – and importantly, for his big brother Banjo too. These gestures remind the family that they’re not alone, and that their children are seen and supported during an emotional and challenging time.
"Thank you doesn’t do it justice. Unfortunately, our time at the hospital isn’t over and won’t be for some time, so to know we are always supported by these two great charities, means everything to us.”
The impact of All Night Long
The All Night Long event became a turning point for Lawson’s family – a reminder of how many people genuinely care. Seeing a community come together to support families facing long-term hospital journeys was deeply moving. It opened their eyes to the generosity, commitment, and compassion happening quietly behind the scenes.
In a world that can sometimes feel overwhelming, the event highlighted the power of people showing up with kindness.
Lawson’s dad, Luke walked the full 42km, surrounded by his closest mates as part of their team, VOGM Warriors. For him, it was an emotional but meaningful experience, knowing he was walking for Lawson and supported every step of the way. Their team didn’t just walk; they rallied. VOGM Warriors became the highest fundraising team of the entire event, raising an extraordinary $49,362.85.
The walk symbolises the courage and strength children like Lawson demonstrate every day in hospital. You don’t give up because these kids don’t give up. You keep going for them. It was an intense experience, but one that inspired the family so deeply that they plan to participate in 2026.
An update
Lawson is currently recovering well from his ninth embolisation and is preparing for his next procedure. There is no end date yet – no clear finish line. Just a long road ahead, walked day by day by a little boy who refuses to give up, and a family who refuses to stop fighting for him.
Lawson’s journey is just one of many, and stories like his remind us why events like All Night Long matter so deeply. If your family has been supported by Ronald McDonald House South East Queensland or the Children’s Hospital Foundation, we invite you to share your story too.
Expressions of interest for All Night Long 2026 are now open. Whether you walk, volunteer, or form a team, every step makes a difference.
